On Nov. 8, 2014, Mayo Clinic in Rochester, Minnesota hosted the 2nd annual Feel the Beat, a day-long event to educate families about what Mayo Clinic is doing to transform the treatment of Hypoplastic Left Heart Syndrome (HLHS). The theme for this year’s event was Hope, with the goal of inspiring families by connecting them with adults living with HLHS and to cast vision for what will be possible in the near future for those affected by HLHS. The event included educational activities and games for the children.
The founders of the ERHF were asked to speak at the event regarding the hope they see in research being done at Mayo along with their journey and ultimate Hope in Jesus Christ. Jennifer Miller, program manager for the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic, said, “Our team is honored to partner with the Emerson Rose Heart Foundation in the journey to cure HLHS.”
Over 30 doctors and scientists are currently working on a cure for HLHS by focusing on imaging, genetics and stem cell research that will have an impact on finding cures and treatments for other heart defects as well. If you or someone you know is interested in learning more or participating in this cutting edge work please contact: Julia Thebiay at [email protected] or visit: http://hlhsblog.mayoclinic.org/.