Zane Wenger was born in October 2013 with Hypoplastic Left Heart Syndrome (HLHS). Zane’s parents did not know he had HLHS until he began having breathing problems shortly after birth. Zane was flown to the Medical University of South Carolina (MUSC) to receive the first of many surgeries related to his heart defect. Despite being from South Carolina, Zane and his family had to move to Florida in order for him to be listed for a heart/lung transplant, which is not available at MUSC. On April 15, 2015, while waiting on a donor match, Zane passed at 6:30 p.m. and went to be with the Lord.
While the Wenger Family’s journey is extraordinary, sadly, Zane’s outcome is not. Congenital heart defects are the most common birth defect in the world, affecting one out of 100 babies and the leading cause of all infant deaths in the U.S. The Emerson Rose Heart Foundation strives to serve these families through these difficult times, spiritually, emotionally and financially.
The Wenger Family is just one example of the many families we serve. The ERHF provides gas cards, hospital meal tickets, hotel accommodations and other necessities to join families in the financial burden that comes from having a child in the hospital. The foundation has provided over $45,000.00 in family support and over $70,000.00 for quality improvement projects at hospitals across South Carolina. Additionally, the ERHF has brought 12 children from developing countries where heart surgery is not available to the United States to receive life-saving heart surgery.
Your support allows us to continue serving families like the Wengers and the children they care for. Thank you for joining us.