About a week after Blair was born she went into respiratory distress, and we took her to the ER. Before we knew it, we were on an airplane to MUSC (Medical University of SC) for heart surgery. She was diagnosed with CoA. At 14 days old she underwent open heart surgery and has been a warrior ever since. It was such a traumatic experience because we thought we had this “healthy” little girl but thankfully everything turned out as well as it could have. Since then we have discovered she also has BAV. She is now almost 9 months old and hasn’t missed a thing. We are all thrown into this group that we never really wanted to be apart of but find strength with this community. These little ones are warriors, and we are so thankful for this community of heart warriors and parents! We always want to raise awareness for CHD because it is much more common than it should be! Happy CHD week ❤️!

About a week after Blair was born she went into respiratory distress and we took her to the ER. Before we knew it we were on an airplane to MUSC for heart surgery. She was diagnosed with CoA. At 14 days old she underwent open heart surgery and has been a warrior ever since. It was such a traumatic experience because we thought we had this “healthy” little girl but thankfully everything turned out as well as it could have. Since then we have discovered she also has BAV. She is now almost 9 months old and hasn’t missed a thing. We are all thrown into this group that we never really wanted to be apart of but find strength with this community. These little ones are warriors and we are so thankful for this community of heart warriors and parents! We always want to raise awareness for CHD because it is much more common than it should be! Happy CHD week ❤️