Owen Matherly

CHD: Hypoplastic Left Heart Syndrome

During our 20 week prenatal appointment, we were excited to learn whether we would be having a boy or a girl. Honestly, we didn’t have a preference, but wanted a healthy child. When I asked was there anything concerning on the ultrasound, our OBGYN’s face and tone dropped, and she said, “Yes; yes there is.” From there began our journey with the world of congenital heart defects and chronic care needs as Owen was diagnosed with hypoplastic left heart syndrome. We pursed every medical intervention and option possible to save Owen’s life. Our journey brought us to MUSC with some of the most experienced and top professionals to treat children with HLHS. Eventually it became clear that no medical intervention would save his life as his heart was too weak with more complications developing. His heart and lungs were too weak to continue on. The Emerson Rose Foundation and MUSC helped us shower Owen with a perfect life in which he only knew love and happiness from those around him. Memories were made including a beaded necklace, an outing outside, a photography shoot of our family, and priceless imprints of his hands and feet. After 26 days of fighting for his life, Owen gained his angel wings. We feel his presence every day in the beauty of a sunset, the warmth of the sun on your face, the surprise of double rainbows, and the serenity of nature. Owen, “I carry your heart, I carry your heart in my heart.” Cummings.