Avery Blake Rogerson CHD: Tetralogy of Fallot with pulmonary stenosis Surgeries: Pulmonary shunt at two weeks old and TOF correction at 7 months old We found out Avery had TOF at 20 weeks pregnant. She was born full term and seemed healthy. She was released from the hospital at 3 days old. We returned [...]
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So far emersonrose has created 53 blog entries.
Annie Vickery CHD: Atrioventricular Block Surgeries: 1 Annie was always a happy child. She was diagnosed with an atrioventricular heart block, 1st degree, meaning her heart's electrical system was not communicating all the way from the top to the bottom of her heart. By the time she turned 5 her heart went into a [...]
James was our first child. We were so excited about starting our family. Fairly early on we knew something was wrong after an ultrasound tech went quiet in the middle of the scan. Shortly afterwards we learned that our sweet baby James had hypolastic left heart syndrome. This began the regimen of doctor's appointments, [...]
Paisley Cunningham CHD: HLHS Hypoplastic Left Heart Syndrome Surgeries: 2 Paisley is 4. Unless you see her "zipper" you have no idea she's battling a critical heart defect, born with just one half her heart, but unstoppable in daily life. At 2 days old she had trouble eating and then breathing. She was flown by [...]
Our sweet 2 year old, Jaxon, went in for a routine doctors appointment. We never knew at that doctors appointment our lives would change. His doctor was concerned for his heart murmur. It didn’t sound good that day, so we were ordered to go see cardiology again. We had seen cardiology before. Our son [...]
Anna Grace Bentley Age: 10 years Congenital Heart Defect (CHD): Hypoplastic Right Heart Syndrome (HRHS); Transposition of the Great Arteries (TGA); Aortic Coarctation; Atrial Septum Defect; Ventricular Septum Defect; Pulmonary Stenosis Brian & Tina Bentley had their world changed forever at their 20-week ultrasound appointment. It was a complete shock to find out their [...]
Owen Matherly CHD: Hypoplastic Left Heart Syndrome During our 20 week prenatal appointment, we were excited to learn whether we would be having a boy or a girl. Honestly, we didn't have a preference, but wanted a healthy child. When I asked was there anything concerning on the ultrasound, our OBGYN’s face and tone [...]
Harmony Faith Hall Age: forever 4 months Congenital Heart Defect (CHD): DORV, TGA, COA, VSD, ASD, hypoplastic aorta, hypoplastic right ventricle Surgeries: 7 (5 heart, 2 brain) Harmony Faith was a fighter. Her short 4 months on this earth were filled with surgeries, pokes, doctors, and tests, but that never stopped her infectious smile. [...]
About a week after Blair was born she went into respiratory distress, and we took her to the ER. Before we knew it, we were on an airplane to MUSC (Medical University of SC) for heart surgery. She was diagnosed with CoA. At 14 days old she underwent open heart surgery and has been [...]
We got to know and meet Jason and Susan Smith in 2011 when our "Little Firecracker" was born on July 4th. She wasn't due yet, but she was in such a hurry to meet her mommy and daddy. She was life flighted to MUSC in Charleston, and she was in the hospital there until [...]