Blake was born in March of 2013 with a very serious, undiagnosed, case of hypoplastic left heart syndrome. Within 24 hours of birth, Blake became very sick and it was apparent that something very serious was wrong. He was airlifted to MUSC where he had his first open heart surgery at 5 days old. [...]
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So far emersonrose has created 32 blog entries.
Caroline Grace was born September 26, 2013 at MUSC. During my 20 week anatomy scan, we were told by my regular OB that they had spotted something on her bladder and we needed to have a better scan at Maternal Fetal Medicine. My husband and I thought it wasn’t going to be anything serious. [...]
Brinkley was born 6 weeks premature with Tetralogy of Fallot and Down syndrome. He spent his first 7 weeks in the NICU. Four weeks later we were emergency airlifted from GHS to MUSC where Brinkley had his first open heart surgery at 12 weeks old. Recovery didn't go as expected and he spent 5 weeks [...]
We found out at our 20 week ultrasound that my daughter Brynleigh would require open heart surgery as a newborn to survive because of her heart defects there was no way to survive without the surgery, the plan was to deliver at MUSC but God had other plans and Brynleigh was born by emergency [...]
I found out Liam had a few heart defects when I was 28weeks. After Liam was born we found out that what we knew was bad was worse. Liam came into this world a fighter. We gave him the name Liam which means warrior 8 weeks before we knew that he truly would have [...]
Harmony was partially diagnosed prior to birth and born at MUSC. It was discovered she has Double Outlet Right Ventricle, Transposition of the Great Arteries, Ventricular Septum Defect, and Coarction of the Aorta. She had the Hybrid Norwood surgery at 8 days old and stayed in the hospital for 5 weeks. She is in [...]
We had no idea that our little boy wasn't "perfect". The ultrasounds didn't show anything and it wasn't until we were leaving the hospital that we knew he had a CHD. I didn't even know what the term meant. I learned a lot in the coming months about his CHD, which was a Ventricular [...]
Your Content Goes Here Paisley is 4 and unless you see her "zipper" you have no idea she's battling a critical heart defect, born with just one half her heart, but unstoppable in daily life. At 2 days old she had trouble eating and then breathing. She was flown by plane in a [...]
Christian was born on May 25th, 2013 at Greenville Memorial Hospital. We had no idea anything was wrong with his heart. His pediatrician came to the hospital to meet him and heard a murmur. We met Dr. Raunikar two days after he was born and he explained his defect to us. Four months later, [...]
Mac was diagnosed before birth and was born at MUSC. We spent 5 weeks waiting for doctors to decide on the best surgical plan. He had his first surgery at 5 weeks old. Then a second at 6 months. His last surgery was at 2 1/2 years old. Now his blood flows directly to [...]