Mackenzie and John were told he would most likely not survive and had less than a 10 percent survival rate. Landyn was hooked up to ECMO on Sunday evening and on Wednesday, the surgeon operated on him. They did a complete tracheal slide and placed a central shunt into Landyn’s heart. The parents were told that this would be a very challenging surgery because the trachea was extremely small, and one of the worst cases that either of the surgeons had seen. They also were told that the trachea would have to be opened more than 40 percent for their son to have any chance of survival and also be able to come off ECMO. Thankfully, Landyn came through the surgery fine and came out of the OR off ECMO!
Landyn has had multiple surgeries and heart catheterizations. During his stay at MUSC, it was noted that Landyn’s left ventricle was not growing like it should. Therefore, his heart would have to be repaired as a Single Ventricle. Essentially, this meant he would be repaired in stages called the Fontan Procedure. After 4½ months at MUSC, Mackenzie and John welcomed Landyn home, just in time for Christmas. Landyn had his second open-heart surgery in May 2012, The Bidirectional-Glenn. Landyn is scheduled to have his third and hopefully final heart surgery, The Fontan Completion, in July 2015.
Mackenzie said, “With clothes on, he looks like a “normal” healthy baby. He has a huge personality and after everything he has been through, he truly is one of the happiest babies I know. Despite the challenges of all his equipment, Landyn has done really well at home. People often hear of miracles performed here on earth but we now can say we live with one every day!”