Karla tells the story of her beautiful heart warrior, Harmony Faith, and her short journey of life.
“Harmony Faith Hall was born in November of 2018 at MUSC in Charleston, SC. She was diagnosed with Double Outlet Right Ventricle, Transposition of the Great Arteries, a large VSD, Coaraction of the Aorta, ASD, Hypoplastic Aorta, and Hypoplastic Right Ventricle. At 8 days old, Harmony would undergo her first heart surgery. She did much better than expected, surpassing everyone’s expectations and learning to use a bottle, eliminating the need for a permanent tube placement. She would need one more surgery before we were able to bring her home on Christmas Eve. Less than 7 weeks after bringing her home, she was emergency life flighted back to MUSC. Her little heart was failing and she would need surgery sooner than expected.
In March of 2019, Harmony had open-heart surgery in an attempt to fully repair her heart. After 20 hours of surgery, 11 on bypass, she was on ECMO support and barely hanging onto life. A week of trial and error passed in attempts to wean Harmony off ECMO. This led to another 14-hour long open-heart surgery. After 21 days on ECMO and another heart surgery, the effects of ECMO began to show. Harmony suffered a brain bleed causing massive strokes. She underwent 2 brain operations in hopes of stopping the strokes and lessening damage. On April 17th, Harmony breathed her last breath in our arms. Harmony Faith was the happiest, calmest baby. She won over not only the hearts of her family, but also those of her medical team. Her 4 short months on this earth were fraught with difficulty, but she never stopped smiling. She was a beautiful blessing and we miss her terribly.
The ERHF® was pivotal in helping us through our time at MUSC. The gas cards, meal tickets, and housing support helped us focus on our baby girl and not have to worry so much about the small things. After Harmony’s passing, their financial and emotional support helped alleviate much stress and difficulty. We are forever grateful for the love and support we received through ERHF®.
Congenital heart defects are scary diagnoses. Everything changes in a minute, but these children are so worth it. Through every hardship, our little heart warrior brought us closer together.
God has provided greatly for us through the life and death of our little heart warrior. Through ERHF® and many other people, He provided every need we had. Nothing went unmet. He gave us a community that loved on us and helped us walk through the joys and the sorrows. We felt His presence every step of the way.”